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The Rare Disease Podcast 4 Medics

The Rare Disease Podcast 4 Medics

Veröffentlicht: 2022-11-28
© 2022 The Rare Disease Podcast 4 Medics
The Rare Disease Podcast 4 Medics - QR Code
28 Folgen
Audio
Anhören auf Apple Podcasts
28 Folgen
Audio
Anhören auf Apple Podcasts
Veröffentlicht: 2022-11-28
© 2022 The Rare Disease Podcast 4 Medics
Aktuelle Folge
Give Blood Spread Love (Sickle Cell Part 2)

Give Blood Spread Love (Sickle Cell Part 2)

Länge: 43:41
The second part of Lucy's interview with columnist and advocate, Dunstan Nicol-Wilson. The continue to discuss parallels between Dunstan's experiences and the findings of the No One's Listening Report. And also how Dunstan's column for Sickle Cell Disease News drove him into raising awareness for the Give Blood Spread Love campaign. Plus mush more!
About Sickle Cell from The Sickle Cell Society
Give Blood Spread Love donor registration form
The ‘No One’s Listening’ report, which is based on the inquiry’s findings, was jointly published by the APPG on Sickle Cell and Thalassaemia and the Sickle Cell Society, a national charity that supports and represents people affected by sickle cell disorders. Findings discussed in this episode from the enquiry are taken directly from this report.
Sickle Cell Sagas by Dunstan Nicol-Wilson for Sickle Cell Disease News
About Blood Transfusions for Sickle Cell Disease
A must read book 'The Immortal Cells of Henrietta Lacks' by Rebecca Skloot - see why at The Henrietta Lacks Foundation
Thank you to our 2022 Partners: Alexion, Amicus Therapeutics, Biomarin, Bionical Emas, Healx, Kyowa Kirin, Orchard Therapeutics, PTC Therapeutics and Sobi.
Medics4RareDiseases is a charity registered in England and Wales (1183996). The charity is financially supported by commercial partners. Some of these companies are pharmaceutical companies. The charity works independently from these companies who have no editorial control over this content or any of the charity's activities. Learn more.
Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.
M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast. 
M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.
M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.
M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
Folgen-ID: 1000588318743
GUID: Buzzsprout-11771630
Erscheinungs­datum: 28.11.2022, 10:00:00

Beschreibung

Interviews with patients, clinicians, advocates, students, researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics4RareDiseases who are asking medical professionals to #daretothinkrare in order to improve diagnosis, clinical care and research in this neglected but really important field of medicine. 350 million people in the UK live with a rare disease so while each disease is individually rare, together rare diseases are common.

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